You can also support us in other ways
- Take part in a fundraising challenge
- Offer corporate support
- Raise awareness
- Leave a gift in your will
- Become a partner
There is no cure for CCHS, but there is hope. Your donation will help support families living with this lifelong and life-threatening condition and will fund research into better care and treatment options.
You can also support us in other ways
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Just Giving Comments
“I am running the South Downs Way 100-mile event for CCHS UK because my Godson has this life-threatening condition”
“In support of my little pal Charlie Wagstaff and everyone living their lives with CCHS”
CCHS is an extremely rare genetic condition which causes sufferers to lose their control of the most basic living function. Breathing. This is always the case when asleep but for some sufferers when awake too. It is caused by mutations in the PHOX2B gene and currently requires lifelong artificial ventilation as life support.