Fitness-to-fly assessment

This study analysed whether children using night time ventilation can travel by air

Congenital Central Hypoventilation Syndrome (CCHS) Explained

CCHS is an extremely rare genetic condition which causes sufferers to lose their control of the most basic living function. Breathing. This is always the case when asleep but for some sufferers when awake too. It is caused by mutations in the PHOX2B gene and currently requires lifelong artificial ventilation as life support.